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Baby Diagnosed With Rare Condition Defies Odds

A Salt Lake City couple was told their baby had a rare condition and would probably die during labor. But now that baby has defied the odds.

When Ben and Alyssa Reidhead found out they were pregnant, they were overjoyed, Fox 13 reported. They were on their way to the hospital to find out the sex of the baby, and got some unfortunate news.

"We were going in for one of the happiest times of our lives and come out walking like we just heard the worst news we could’ve ever heard," Ben told Fox 13.

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At 23 weeks, doctors diagnosed baby Will with encephalocele, a rare condition that causes the baby’s brain to grow outside of the skull.

"They just kept saying oh he’ll be born but he’ll only live for a couple minutes or if you go through labor, he’ll probably pass away during labor," Alyssa recalled.

The Reidheads started planning a funeral.

"We picked out a casket and we picked out what we were going to do," Alyssa said.

When the time came to give birth, the Reidheads were torn.

"Almost scared of having the baby come not because we didn’t want him to come but just because we were afraid of losing him," Ben said.

But Alyssa successfully delivered the baby by C-section in May at Primary Children’s Hospital. The couple was shocked.

"We heard a cry and that made me cry and him cry because we were like, ‘oh he’s crying,’" Alyssa said.

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"He’s not hooked up to anything," Alyssa added. "He’s breathing fine. He’s lifting his head. He’s moving around. He’s pretty much acting like a completely normal baby."

Despite the successful birth, baby Will still has some obstacles ahead of him. He was diagnosed with an even more rare condition called cutis aplasia. The back of his skull is missing, and his brain is only covered by a thin layer of membrane.

Doctors are still unsure about the best treatment for baby Will going forward.

"They’ve been consulting with a lot of other doctors and trying to figure out exactly what is the best option," Ben said.

Still, the Reidheads said they couldn’t be more grateful.

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A GoFundMe page was created to help pay for baby Will’s medical costs. It has already reached its goal of $10,000 in just six days.

Sources: Fox 13, GoFundMe / Photo Credit: The Reidheads via GoFundMe

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