7-Year-Old Boy Raises $750K To Save His Best Friend From Rare Liver Disease

| by Sarah Fruchtnicht

A 7-year-old California boy raised $750,000 to help his best friend, who suffers from a rare liver disorder, because their friendship is as "awesome as a chocolate bar.”

Dylan Siegel, of Beverly Hills, wrote a book called “Chocolate Bar” and has been selling copies since 2012.

"I'd like to help my friend, that's the biggest chocolate bar,” he read from his book.

The proceeds go to help Jonah Pournazarian, 8, who suffers from an illness called Glycogen Storage Disease Type 1b, which means his body has trouble processing sugars.

One of only 500 children diagnosed in the world, Jonah has to be fed on a precise schedule a carefully measured mixture of water and cornstarch through a tube in his stomach.

"We hope we don't miss an alarm clock because he could die. His life is our hands," said mother Lora Pournazarian. She says it's not an anxiety she would wish on any parent.

One scientist at the University of Florida who was working towards a cure ran out of funding. That’s when Dylan began selling his book at $20 a piece on Every penny goes to the Florida lab, which says it getting very close to a cure.

"It is now reality. It's not just a dream that these children can be cured," said Dr. David Weinstein.

Sources: WAPT, KSDK