Ari Ne'eman on Autism.
Ari has had a quite wonderful piece on him
in Newsweek. It takes on the hard questions for Ari and he answers them
with the aplomb that has come from years of hard work of learning to be
an excellent networker:
Ne’eman battles a
strange kind of image problem: his critics accuse him of not really
being autistic. His mother, Rina, is particularly sensitive about this.
“People who see Ari today have no idea where he’s been,” she says. As a
young child, Ne’eman was verbally precocious but socially challenged.
“I didn’t understand the people around me, and they didn’t understand
me,” he says. He was bullied and ostracized—back then he didn’t look at
people; he flapped his hands and paced incessantly (he still does both
today); he brought newspapers to elementary school as leisure reading.
“I think the word ‘freak’ may have come up,” he says. He was, at one
point, segregated from his peers in a special-ed school. That led to
struggles with depression and anxiety so severe he would pick at his
face until it bled. I asked Ne’eman how he manages all the professional
mingling he does today. Small talk makes him uncomfortable, but he’s
learned to play along. Still, none of it is easy. “You come out of a
meeting and you’ve put on a mask, which involves looking people in the
eye, using certain mannerisms, certain phrases,” he says. “Even if you
learn to do it in a very seamless sort of way, you’re still putting on
an act. It’s a very ex-hausting act.”
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This is a
common attack tactic from people like Jake Crosy at AoA or Harold
Doherty. They demean the efforts that autistic people such as Ari have
needed and still need to put into their lives to advocate for their own
beliefs in favour of the promotion of their own limited and limiting
set of autism related beliefs. But as history has shown, its people
like Ari – those who are willing to be openly challenged about what they think who will win the respect of people.
done Ari, I’m proud to think that you are representing all manner of
people on the spectrum, from the very high functioning Jake Crosby to
the very low functioning such as my daughter. Thank you.