After their daughter died due to a medical error shortly after being born prematurely at 26 weeks, the parents of Isabella Hope Hill have successfully campaigned to help ensure that other parents don’t go through the same tragic loss.
Jade and Dan Hill welcomed there daughter Isabella at Liverpool Women’s Hospital, after she was delivered by emergency Caesarean when Jade’s placenta began to fail and she was pre-eclampsia, Daily Mail reported. Isabella weighed only 1 pound and 13 ounces at the time of her birth.
Following her early birth, the baby was then put on an umbilical venous catheter (UVC) to feed her until her organs were more fully developed. However, Isabella’s feeding tube either moved from its original position or a fatal mistake was made after the tube being improperly positioned.
“We had an inkling that someone was to blame, but what they didn’t tell us at this stage was that the line had perforated her liver,” said Jade, 34.
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“They told us that she was a fighter and there was a good chance we would be taking her home,” she added. “Then on day 8 they started urgently phoning us and telling us to come in.”
Four days after a feeding tube was inserted close to her heart, the premature baby died as a result of crushed organs from the line.
Now, two years after losing Isabella, Jade and Dan are making sure their daughter’s death will help save the lives of other babies and have won the fight for NHS guidelines on feeding tubes to be changed.
Although the problem could have been caught with X-rays, none were taken in breach of hospital guidelines and Isabella took her last breaths while laying on her mother’s chest.
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“They resuscitated Isabella in front of us several times, allowing us to have her baptized by the chaplain, and then she died on my chest,” Jade said.
Following the tragic loss of Isabella, her parents began campaigning for stricter guidelines on UVCs to be put in place throughout England and Wales. Their fight would ensure that babies with UVCs were regularly X-rayed so any movement or misplacement of the lines could be detected as early as possible. Such a procedure would have saved Isabella’s life, according to Daily Mail.
“Losing Isabella was understandably the hardest thing we’ve ever gone through, and we’re still suffering the consequences,” Dan said.
“Isabella suffered and so did we, but we want to make sure that thanks to our daughter, no-one else will," he added.
With the support of Liverpool Women’s Hospital, the new official guidelines will be implemented later this year.
The survival rate of babies born prematurely in the U.K. has risen from 40 percent in 1995 to 53 percent in 2006, according to a study cited by the NHS.