"Autism Speaks" Founder Bob Wright Snubs Poor, Autistic Adults
The New York Post reported on Autism Speaks founder Bob Wright (left) having a grumpy slap at adult autistic people who were protesting the fact that Autism Speaks still has no autistic representation on its Board.
Bob Wright had harsh words for protesters who tried to muck up the A-list benefit concert he put on at Carnegie Hall on behalf of autistic kids.
“The
protesters are lucky,” said Wright. “They’re well off enough, healthy
enough, to do it. I wish my grandson were able to join them.”
Wright runs Autism Speaks, which has raised over $200 million for research into a disorder that afflicts mainly children.
That
didn’t stop a clutch of sign-carrying adult protesters from descending
on Carnegie Hall Tuesday night, trying to disrupt a concert attended by
Donald Trump, Howard Stern and Martha Stewart. Protesters complain that
there’s not one autistic person on the board of the org, which produced
an “offensive” ad suggesting that autism was a fate worse than death.
Wright,
whose grandson cannot talk because of autism, said the disorder is
exploding among young kids who can’t speak for themselves.
“This is serious business,” he said.
Note
how the reporter states that the benefit was for autistic kids and
further states that autism affects mainly children. This should give
some insight into the silly one dimensional world that the Wrights, and
by extension, Autism Speaks inhabit. Of course autism doesn’t affect
mainly children. In fact, it would seem that the reverse is true.
I
would like to suggest to Bobo that what is serious business is blindly
misrepresenting autism either purposefully or (more likely) out of
ignorance. I would also like to suggest that
Maybe Bobo might take a look across the pond
if his cheeks aren’t still smarting from the slapdown he got last time
he came over here. Maybe the reality of life for autistic adults over
here might cause him to get a bit of a reality check as to where his
research priorities should lie. As he continues to steer Autism Speaks
down the increasingly stupid looking anti-vaxx hypotheses,
A THIRD of Wales’ autism sufferers are unemployed and living in ‘poverty’ without benefits, a charity has said.
9,000
autistic adults are surviving (sort of) on handouts from friends and
family. Not only are they subject to ignorance in job centres, they are
not made aware of how to make a claim:
She [Shirley Parsley] said: “It is scandalous, therefore, that thousands of people with this serious, lifelong and disabling condition are being consigned to poverty by a complex and counter-productive benefits system.”
This is the reality of life for autistic adults. Abandoned by a state system and also abandoned by Autism Speaks, an organisation focussed solely it seems on people of Bob Wright’s grandchilds age. Whilst Bobo complains about how autism is ‘exploding amongst kids who can’t talk for themselves’ (a factoid for which there’s no valid science), the adults he and his organisation turn their backs on are literally starving.













"Autism Speaks" Founder Bob Wright Snubs Poor, Autistic Adults
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Kevin Leitch, ASAN Follower, Misrepresents Bob Wrights Comments
Kevin Leitch does what he often does, he misrepresents by super-imposing his Neurodiversity ideology on the facts. In this case he misrepresents what Bob Wright said by pretending that Mr Wright opposes the interests of autistic adults. Nonsense.
The handful of autistic adults who were trying to ruin a benefit held to help autistic children were there as part of a protest organized by ASAN, a self appointed Autism "Spectrum" Self Advocacy Network. ASAN has no representatives of severely autistic children or adults on its board and opposes the objectives, including the search for autism treatments and cures, of Autism Speaks. They even oppose the existence of Autism Speaks.
Bob Wright simply pointed out that these very high functioning autistic adults who were protesting a benefit for autistic children have little in common with his own grandson who lacks their many gifts and abilities. I am the father of a severely impaired 13 year old boy with Autistic Disorder and I agree. These few very fortunate people have no inherent right to speak for my son or other autistic children or severely impaired autistic youths and adults. For that matter they do not represent all autistic adults either.
Many autistic children are in need of treatment, cures, help for the impairments imposed by their autism disorders. That is what the few protesters oppose. Bob Wright simply pointed out, more politely than I would have done, how absurd and self centered their activities are at times.
Mr. Leitch opposes Autism Speaks organizational goals of researching causes and cures for autism and generally helping autistic children and adults. He did not openly admit his anti-Autism Speaks bias or his subservience to anti-autism cure groups like ASAN but his comments reek of these facts.
Mr. Leitch should provide readers with some science backed "factoids" of his own. Like what these barely autistic, attention seeking protesters have in common with severely autistic children or severely autistic adults. He might also provide some factoids to demonstrate why he feels that the protesters represent autistic adults generally or anyone except themselves.
Bob Wright, unlike Kevin Leitch, and the protesters who tried to disrupt the Autism Speaks benefit, has done much to help autistic children AND autistic adults.I hope Bob Wright continues his good works undeterred by the self centered ideological agendas like those of the protesters, ASAN and Kevin Leitch who seek to interfere with families and organizations trying to help autistic children and adults.
- AutismRealityNB November 24, 2009 4:16AM
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Hear Hear
Thanks, Kev. I have yet to hear anything at all from Autism Speaks about their reasons for keeping adults with autism off the board... in fact, they've never (so far as I know) even mentioned the issue despite many of us in the community asking, requesting, and demanding a response. I find it all very strange.
I also find it rather absurd to hear about young Christian (Bob's grandchild) from Bob - when Bob's daughter, Christian's mom, is apparently in complete disagreement with her parents and has very vocally broken away from Autism Speaks. Again, strange stuff.
As you say, kids with autism can't speak for themselves - in large part because they're kids. But there are plenty of teens and adults out there who are talking up a storm. Sure would be nice to give at least a couple of those individuals a seat at the table.
Lisa
- lisajorudy
November 24, 2009 5:55AM
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ASAN Not Really Interested in Severe Autism
ASAN is more interested in preventing Shiny Aspies from being aborted, even though that is not anywhere in the near future, than saving those with Autistic Disorder in institutions (e.g. JRC and state institutions) from severe psychological and perhaps even physical and sexual damage in the present that will leave them scarred for a lifetime (as in, they will be "permanently scarred.")
- stephanielynnkeil
November 26, 2009 2:44AM
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Who is an authority?
There are people who think that psychologists who do not have their own children should not specialize in the treatment of children. There are people who believe that those who do not have children cannot be teachers. Having autism does not make one an expert on autism. It does convey knowledge of how ONE feels about ONE's own autism, and how ONE feels about how others treat that ONE. A Board of Directors might best be served by a mix of parents of autistic children, scientists, therapists, and those who have the financial interest in helping the broader autistic population. Making a high functioning autistic person a board member brings the narrow perspective that such a person carries. I wonder whether the social limitations of such an individual would be valuable to the board or a liability.
- Rashi18
December 29, 2009 9:38AM
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